Showing posts with label personal. Show all posts
Showing posts with label personal. Show all posts

Friday, April 8, 2011

Upcoming birthday

This time last year I was preparing for unexpected surgery to remove what remained of the tumor in my sinuses.

My imagination was spinning with terror. This was not the plan.

The surgery was on April 13th and went very well. I was released the day before my 30th birthday.

Not quite the celebration I imagined.

The surgery went very well. I had very little pain and was released the next day.

I was officially cancer free, yet it would be months before they could tell if the surgery was successful.

Any sense of relief alluded me...

Its almost a year later.

I began writing with the intention of expressing gratitude and excitement for the change in my health since my last birthday.

Instead I am finding a deeper appreciation for last year's gift -- my life.

My birthday has become more than a celebration of my birth.

Thursday, April 7, 2011

Where am I going?

As my body heals there is a voice in my mind.

It started quietly. Just a twitch. A moment that passed quickly and shallow.

No evidence remained of its visit.

Time passed.

Its become more persistent. More loud. More demanding. Lingering.

Etching itself deeper.

The people around me hear it too.

"What about work?" It asks.

In my journey, I've died and been reborn many times.

Each time I am more connected. Less attached. More open.

I have been given the time and space to become myself. To heal. To listen.

This insistence on work persists.

How do I "work" and continue on my path of healing?

Which passions do I share? Which do I keep private?

What gifts do I have to offer? What do I want to receive?

What is it that I am seeking?

Thursday, November 11, 2010

Tuesday, August 31, 2010

A year ago today, I began my life as a cancer patient. It sucked. And I'm glad its over.

Its been a long time since I posted... I am happy to report that I am cancer free and have completed treatment! It was a really long and difficult journey. The English language is limited in its ability to describe it. And I'd rather not relive it, at least not now.

My hair is growing in and my energy improves everyday! I am able to spend my days with my family and have been cherishing every moment.

I thank everyone for their support and encouragement this past year!

Monday, September 21, 2009

The ups and downs of it

Kaylee came home on Friday. I had no choice but to run around with her. It was great medicine! I missed her terribly and was so glad to be her #1 go-to person!

Saturday was rough.

Emotionally and physically, Matt and I were drained.

There was a lot of crying, doubt and fear.

It happens on this roller coaster of cancer. Remembering it will pass and I will feel healthy again was more than difficult.

Sunday was a turning point.

I ate well.

I drank a lot of water.

I laughed a lot with good friends.

And I shaved my head!

I feel like Natalie Portman in V for Vendetta.

I also had a great acupressure/reiki/massage session with Vanessa, my sister in law. She found a ginger tea that I love!

I felt reborn in positive energy and spirit.

And just in time, because Sunday night I left my family once again to stay at the RMH and resume treatment.

So, here I am.

I continue on my path of what seems to be most resistance, savoring the good days and pushing through the bad.

Wednesday, September 16, 2009

First cycle complete

A bunch more to go...

I'm now recuperating at home.

The chemo made me very ill. I'm still feeling it. I have hardly gotten out of bed the last few days.

Every day I'm a little better. I hope to go for a walk today.

Its hard to believe I'm going to go back next week.

But every week done is a week closer to being cured.

This week off has been especially hard because Kaylee has the chicken pox. She has to stay at her Grandma's until she is all better. I haven't seen her in over a week. I am beyond sad.

I hope to see her before my next treatment cycle. Her little hugs, giggles and smiles are the best motivation and cure for this cancer patient.

Tuesday, September 8, 2009

One week down

After only one week I can breathe out my nose.

I smelled flowers on the street.

Chemo certainly knows how to kill.

Unfortunately it does not distinguish cancer.

But today starts a new week and I'm feeling better.

My body knows how to heal.

Saturday, August 22, 2009

Giving up a year of my life

To save the rest of it.

That's what the doctor told me I have to do to cure this cancer.

I have a daughter that will need me in her life, so that is the plan.

I spent the past week at Sloan. Taking tests. Speaking with doctors.

And crying... a lot of crying.

It is a surreal experience. Trying to understand the complicated schedules and make sense of how my family can manage life without mom.

And not just without mom. Life with a cancer patient.

I'll be treated as an outpatient at Sloan on a clinical trial.

My treatments with be 3 week cycles of chemotherapy for about a year. Typically the cycles are 2 weeks of treatment and 1 week of rest. During my week of rest, I will have to go in for tests.

When I have radiation, it will be 6 weeks with no break. This does not change the chemo schedule.

Some treatments are an hour. Some are ten.

I live about 1.5 hours away from Sloan with no traffic.

So every day is 3 hours longer, just for driving. Probably a little more.

3 hours of being stuck in the car and potentially very ill.

My initial reaction was defeatism.

My next reaction was complete and total fear.

I have a daughter and husband who need me. Who love me.

I am determined to make this work.

I will stay in a hotel on the long days.

I will coordinate a schedule of driving with my family and friends. I hope to have enough people to call when I cannot make it to the city and someone will help.

In the event that falls through, I will use a car service. The sustainability of this option is low for its cost and the emotional drain of being alone. I hope it is a rare thing.

I will sleep in my own bed. I will get to see my daughter and husband everyday.

I will remain positive and strong.

This year of my life. The year I had cancer. The year before I was a cancer survivor starts now.

Monday, August 17, 2009

Talk about rare

The morning has been hectic. First, I went to the ENT who did my surgery (and found my lovely growth) to remove the packing in my nose -- 6 feet of guaze!! I feel about 100x better!

My husband, Matt, and I went to breakfast and mid coffee found out I have embryonal rhabdomyosarcoma. A rare childhood cancer. Weird, right?

Living in New York, I am lucky to be close to Sloan Kettering hospital and thankfully they have an oncologist who specializes in this cancer. He happens to be a pediatric oncologist but I'm a little woman, so I should feel at home with the kid size chairs :P

Matt is dropping off the pathology today, and hopefully by my appointment on Wednesday we'll have a plan of action.

Saturday, August 15, 2009

wunda's world upsidedown

The last few months I've been battling sinus problems.

First guess was an infection, but the antibiotics did not help. My dr thought I needed a longer rx, but since we weren't sure it was infection, I opted to wait and see. Allergies were also a possibility.

Some days, I felt broken -- though I figured running after Kaylee and getting little sleep were to blame.

I went to an ear, nose and throat dr last Tuesday.

He took one look into my nose and his reaction was distressing. I don't remember exactly, but once you hear cancer, you don't hear much else.

He said the chances were small, but we should do testing quickly, to alleviate any fear.

That day I had a CT scan. That afternoon he called and brought my husband and I back to the office.

The results were easy enough to see -- the sinus cavities on my left side were filled. He said it looked a lot like an antrochoanal polyp (one side and really big). It could also be a fungal infection... and of course the possibility of cancer was looming in the room.

One thing was definite. It was big and needed to be removed.

Surgery was scheduled for Friday. He would do a biopsy and then depending on the result, stop or remove the benign tissue.

As soon as I woke up from surgery, I asked the time -- one surgery would be longer than the other... It was less than two hours. My mom and husband were by the bed and someone told me it was malignant.

Although my first reaction was "are you sure?" I was calm. The fear of what could be was replaced with reality. Cancer. I was not surprised. I had all week to prepare. I'm sure the drugs from the anesthesia helped me stay calm.

I've known many who have battled cancer.

I lost my father, my husbands aunt, my uncles wife, my grandfather, my sister's mother in law.

I know survivors too -- two uncles, my aunt, a few friends, parents of friends.

What are the chances I would be added to the list? When I was a little girl, I was a bit of a hypochondriac. I was always worried I had cancer. As I got older, my fears subsided.

When I went to the doctor last Tuesday, the last thing on my mind was cancer. I had just given birth and nurse my baby? How could a diseased body support such miracles?

I will know more about a diagnosis on Monday. The weekend is going slow.

I am nursing my daughter as much as I can. The idea of early weaning is heartbreaking. I fear she will grow up without a mother. I am thankful she is only 1 as she will not remember. She may not remember me. I hope I can live on in her through the bonding relationship we've created and the stories and memories people around her hold close.

And of course, I am not calling it quits -- I don't even have a diagnosis, or 2nd opinion. My strategy is the same I used to run a marathon. If I felt tired, in pain or I couldn't go on, I would ask myself, "can you finish the next mile? just up to that next tree? will you be disappointed if you stopped because you know you had it in you to keep going?"

As long as there is a chance (even a fools hope) and I can make it to the next tree, I will. I will come through this a survivor, regardless of my mortality.

I am scared. Writing is an easier form of communication. I say the word cancer with tears in my eyes and a closed throat. I write it with ease. I am thankful for this outlet.